Ron had experienced his mother’s passing six months after her being diagnosed with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. Now, over 30-years later, he has been diagnosed with the same debilitating disease. The unique gene (C9orf72) that is genetically passed on to generations that follow was identified and the battle was on.
His youngest daughter Rachel had an idea – If her daddy would not be able to dance with her on her future wedding day, maybe the time to dance was now. Here are her words: ...read on